Loading…
This event has ended. Create your own event → Check it out
This event has ended. Create your own
Please note, the schedule and content may still be updated and is subject to change. 
View analytic

Sign up or log in to bookmark your favorites and sync them to your phone or calendar.

Friday, November 11
 

4:00pm

Registration
Friday November 11, 2016 4:00pm - 9:00pm
Atrium

6:00pm

Opening Reception
Mix and mingle with other attendees, check out the exhbitors and experience a taste of Milwaukee with craft, small batch soda from local brewery Sprecher.  

Friday November 11, 2016 6:00pm - 7:00pm
Atrium

7:00pm

Welcome
Friday November 11, 2016 7:00pm - 7:10pm
Regency AB

7:10pm

Innovation Tank
FARE Teen Summit Innovation Tank will feature teens presenting their innovative ideas for improving the lives of people living with food allergies.

FARE Teen Summit Innovation Tank will feature teens presenting their innovative ideas for improving the lives of people living with food allergies. Teens will pitch their ideas to attendees and a panel of judges, and voting will take place throughout the weekend. The winner be annouced on Sunday and will win a $100 cash prize.




Speakers
avatar for Denise Bunning

Denise Bunning

Denise A. Bunning is an educator, support group leader and advocate who actively works to improve the lives of children with or without food allergies. A former elementary school teacher, Denise earned a BA in Early Childhood/Special Education from Boston College, an MSED in Special Education from Northern Illinois University, and a CAS in School Administration from National Louis University. In 1997, Denise co-founded MOCHA (Mothers of Children... Read More →
avatar for August

August "Auggie" Maturo

FARE National Ambassador August "Auggie" Maturo is our special guest this weekend. | | Maturo started his acting career at the age of four when he was cast in the series regular role of 'Issac' in the one-hour CBS drama pilot Applebaum, starring Rachelle Lefevre and Rhys Coiro. The project was directed and produced by Christopher Columbus. He stars in Disney's Girl Meets World as series regular 'Auggie Mathews.' Other television credits... Read More →
avatar for Amy O'Keefe

Amy O'Keefe

Amy O’Keefe leads a graduate program in Design Innovation and teaches Service Design at Northwestern University.  Recently, Amy and her students partnered with Dr. Ruchi Gupta’s team to understand and design services for food-allergic students transitioning to college.    She has designed services and integrated multi-channel initiatives for Fortune 50 retail and global Am Law 100 clients.  Amy received her BA... Read More →
avatar for Carlo Steinman

Carlo Steinman

Carlo Steinman is a Research Analyst at The Research Board, a private think tank in New York City. He recently graduated from the University of Chicago with a degree in Classics. Carlo has spoken at and participated in Teen Summit since its inception and is delighted to return to share his experiences and advice.


Friday November 11, 2016 7:10pm - 8:10pm
Regency AB

8:20pm

Break
Friday November 11, 2016 8:20pm - 8:30pm
Atrium

8:30pm

Teen Trivia Night
Come for the trivia, stay for the fun! Friday night's teen social will feature trivia, fun and a chance to get to know your fellow teens with food allergies.

Friday November 11, 2016 8:30pm - 10:30pm
Regency C

8:30pm

Parent Trivia Night
Come for the trivia, stay for the fun! Friday night's parent social will feature trivia, fun and a chance to get to know your fellow parents of teens with food allergies.

Friday November 11, 2016 8:30pm - 10:30pm
Regency D
 
Saturday, November 12
 

7:30am

Registration
Saturday November 12, 2016 7:30am - 8:30am
Atrium

8:30am

Making the Jump: Middle School to High School
Sophia and Jack plan to give words of encouragement to high school -bound middle schoolers, who are suffering from food allergies. They will specifically discuss methods for self-inclusion when participating in activities that are very common, but can be extremely challenging for children with food allergies, like playing sports and eating out in groups. Their talk will give tips for staying safe and feeling included when making food choices as a teenager.

Brett's talk will delve into the many questions that plague a high school student with food allergies, including what to eat at school, during school functions, and on school trips. Following his lecture, he will open up for specific questions from audience members, providing information for both students to empower and protect themselves, as well as for parents to support their children.

Speakers
avatar for Sophia Anderson

Sophia Anderson

Sophia is a high school sophomore from Sarasota, Florida and a part of the Teen Advisory Group. She is allergic to dairy, eggs, peanuts, tree nuts, and sesame, and has intolerances to soy, wheat, corn, rice, beef, and some fruits. She also suffers from asthma and seasonal allergies. Sophia has had multiple life-threatening reactions, and has given herself the epipen before. She enjoys reading and music, and participates in the band and drama... Read More →
avatar for Brett Hoffman

Brett Hoffman

Brett Hoffman is a 17 year old senior at Ottawa Hills High School near Toledo, Ohio. He is captain of both the varsity basketball and golf teams. In addition to playing sports, Brett is also an active member of the community, participating in Youth Leadership Toledo and YIPEE (Youth In Philanthropy Encouraging Excellence). Ever since he was one year old, he has been allergic to peanuts, tree nuts, fish, shellfish, and sesame. For the past 16... Read More →


Saturday November 12, 2016 8:30am - 9:15am
Executive CD

8:30am

What I learned: Teen Clinical Trial Experiences

Susan and Amanda have both gone through clinical trials, and learned a lot from their experiences. 

In this session, Susan will share what her clinical trial experiences taught her about anaphylaxis. Susan was a participant in PRROTECT, a double-blind OIT (oral immunotherapy) clinical trial. She now knows she received the placebo.  Susan had multiple anaphylactic reactions during the clinical trial and became very familiar with the signs and symptoms of anaphylaxis and knowing what to do.  Susan made a video including footage of herself during one of her anaphylactic reactions, which she will show.  After the video, attendees will have the opportunity to practice injecting an expired EpiPen into an orange.

Amanda will discuss her experience going through two clinical trials and then working on research. She'll talk about the things she's learned from each of these, and how her family has been impacted by clinical trial experiences. 

 


Moderators
avatar for Christina Eldridge, MD

Christina Eldridge, MD

Dr. Eldredge is board-certified in Family Medicine, and has a personal interest in food allergies, stemming from her daughter's diagnosis with a peanut allergy. At the time of diagnosis, she was appalled by the lack of training provided to parents and patients for dealing with food allergy emergencies, which led her to begin development of an app aimed at teaching parents and other caregivers how and when to use epinephrine. Dr. Eldridge... Read More →

Speakers
avatar for Amanda Palin

Amanda Palin

Amanda is an 18 year-old high school senior from NY, NY. Allergies run in her family. She was diagnosed with peanut allergies at the age of 2, entered her first clinical trial at the age of 11, and entered her second clinical trial at the age of 15. After two clinical trials were proved unsuccessful for her, she turned to research. She interned at the pediatric lab of allergy and immunology at Mount Sinai throughout her junior year of HS. 
avatar for Susan Tatelli

Susan Tatelli

Susan Tatelli is a 13 year old eighth grade student at Northwood Junior High School in Highland Park, Illinois, who recently completed an 18-month enrollment in PRROTECT (Peanut Reactivity Reduced by Oral Tolerance in an Anti-IgE Clinical Trial). Of the 36 subjects enrolled in PRROTECT, 8 subjects initially received a placebo. Susan was one of the control subjects in the study, meaning that Susan attempted to achieve rapid desensitization to... Read More →


Saturday November 12, 2016 8:30am - 9:15am
Regency CD

9:15am

Traveling with Food Allergies
Andrea, Noah, and Katie all have experience traveling domestically and internationally with food allergies. Their talks will cover navigating foreign terrain with caution, especially without the presence and assistance of parents. Key points will include critical advice for taking preemtive and proactive protective measures, like locating nearby hospitals and carrying information cards detailing allergies in the local language.

Andrea will also speak in depth about questions to ask during college visits and how to use college visits as a practice run for the real thing. She will explain how getting to know the campus nutritionist and finding out where the closest grocery stores are can make college with food allergies much less daunting. 

Speakers
KK

Katie Korpacz

Katie is a sophomore at Mount de Sales Baltimore, Maryland. She has anaphylactic allergies to peanuts and some tree nuts and allergies to shellfish, soy, and dairy. Katie has extensive experience traveling in the US and in foreign countries. The love of travel –even with food allergy and other medical conditions– does not keep her from experiencing other countries and cultures. 
avatar for Andrea Schmidt

Andrea Schmidt

Andrea Schmidt is a high school senior from New Hampshire, who is allergic to dairy, eggs, peanuts, tree nuts, shellfish, kiwi, and sesame and other seeds. She enjoys dancing, baking, and painting. This is her second teen summit, and she also attended the 2009 FAAN Kids’ Congress.
NW

Noah Weiner

Noah Weiner is a high school sophomore from Michigan, who is deathly allergic to dairy, eggs, peanuts, tree nuts, and sesame, has other intolerances, and has self-injected epinephrine. Although he also has asthma and EOE, and has had many allergic reactions, he has been able to be very independent in managing his food allergies. Noah recently traveled to Europe and ate out very often, which is why he is taking part in this presentation about... Read More →


Saturday November 12, 2016 9:15am - 9:45am
Regency AB

9:15am

Did You Know?
FARE has resources from school support to understanding how to read labels. Marie will give parents a quick overview of FARE resources and where to find them. 

Speakers
MM

Marie Malloy

Marie Malloy joined FARE in September 2015 and became the National Director of Community Engagement Programs in August. She leads a team of three (soon to be five) regionally-based staff whose responsibilities include answering questions from the food allergy community, supporting the college program and helping with advocacy efforts. She is overseeing new community-based initiatives in 10 cities starting this fall. Prior to joining... Read More →


Saturday November 12, 2016 9:15am - 9:45am
Regency CD

9:45am

Break
Saturday November 12, 2016 9:45am - 10:00am
Atrium

10:00am

Teens Take Action - How to Educate and Raise Awarness

Being a teenager can be tough, and adding food allergies to the mix can complicate everything from eating out to dating to going to school. Come learn what Jack, Kate and Sydney are doing to help spread awareness and educate their peers about food allergies. 


Speakers
avatar for Sydney Silverman

Sydney Silverman

Sydney is an 8th grader at the Rodeph Sholom School in New York City, who is allergic to peanuts and tree nuts, and sensitive to sweet potatoes and bananas. Sydney is a Teen Advisor for FARE 2016, and this will be her third FARE teen conference.
avatar for Jack Yonover

Jack Yonover

Jack Yonover was diagnosed with an allergy to tree nuts at the age of ten. He was very frustrated by what he describes as the transition from a “regular kid” to “the kid with the food allergy” and how that impacted all aspects of his life. Rather than sitting around and being frustrated by other people’s ignorance of the subject, he made it his mission to change the way the world understands and perceives food... Read More →


Saturday November 12, 2016 10:00am - 10:30am
Regency AB

10:00am

Anaphylactic Emergency: Teaching Adolescents Preparedness
When it comes to food allergies, preparedness can mean the difference between life and death. This talk will cover ways that medical professionals are using techonology to fill the knowledge gaps for people battling food allergies, both as sufferers and support systems.

Dr. Gallagher will present data about the most effective teaching methods for teenage patients and his plan for using a smartphone training tool to implement those methods. Dr. Eldridge will introduce an app that she created to teach parents, caregivers, and patients how and when to use epinephrine.

Speakers
avatar for Christina Eldridge, MD

Christina Eldridge, MD

Dr. Eldredge is board-certified in Family Medicine, and has a personal interest in food allergies, stemming from her daughter's diagnosis with a peanut allergy. At the time of diagnosis, she was appalled by the lack of training provided to parents and patients for dealing with food allergy emergencies, which led her to begin development of an app aimed at teaching parents and other caregivers how and when to use epinephrine. Dr. Eldridge... Read More →
avatar for Joel Gallagher, MD

Joel Gallagher, MD

Dr. Gallagher is currently an Asthma/Allergy Fellow at the Medical College of Wisconsin and the Children's Hospital of Wisconsin. He specializes in food allergies and immunodeficiencies. After graduating from medical school at the University of Arkansas, he completed a pediatric residency in Charlotte, North Carolina at Levine Children's Hospital before moving to Milwaukee for fellowship. He is board-certified... Read More →


Saturday November 12, 2016 10:00am - 11:00am
Regency CD

10:30am

Team Building/Ice Breakers
Speakers
avatar for Sue Lein

Sue Lein

Sue Lein is the owner of Camp Emerson, the “gold standard for how camps can accommodate allergic campers”. Sue herself is allergic to eggs and for over 20 years has made it her mission to ensure that children and adults can participate at camp without worrying about the food. While Camp Emerson is not just for people with food allergies, EoE and Celiac Disease, every child and adult walks the talk and has created an environment of... Read More →
avatar for Tom Sheldon

Tom Sheldon

Tom comes all the way from England to be part of the Teen Summit. As Associate Director at Camp Emerson, Tom hires and trains the staff to create a caring and engaged community. Tom’s first exposure to food allergies was years ago as a counselor for a very young boy with allergies to soy, wheat, eggs and milk and complex medical issues. He learned the vigilance needed to watch over kids with food allergies and to ensure that they knew the... Read More →


Saturday November 12, 2016 10:30am - 11:00am
Executive AB

10:30am

Team Building/Ice Breakers
Speakers
avatar for Daria Burrell

Daria Burrell

Assistant Director, Camp Wingate*Kirkland
Daria Burrell, Assistant Director of Camp Wingate*Kirkland - a peanut, tree nut and sesame-free camp for kids ages 7-15 located on Cape Cod. Camp W*K easily accommodates gluten-free, dairy, wheat, soy, egg, and fish allergies among others. If you thought that overnight camp wasn't an option due to food allergies please speak with Camp W*K! They are proud to be a Corporate Partner of FARE and are thrilled to once again be a Silver Sponsor of... Read More →
avatar for Sandy Rubenstein

Sandy Rubenstein

Sandy Rubenstein is warm, friendly and an amazing camp professional - most importantly, she is a Mom who understands kids and she likes wearing a clown nose!   Sandy is the Owner & Director of Camp Wingate*Kirkland on Cape Cod a peanut, tree nut and sesame free environment that has accommodated kids with all food allergies since 2006. Campers with food allergies feel confident and secure that Camp W*K... Read More →


Saturday November 12, 2016 10:30am - 11:00am
Executive CD

11:00am

The Silver Lining
Most of the conversation around food allergies tends to focus on the negative side of things, and for people who at at risk for life-threatening reactions, it may seem like there could not possibly be anything positive about it. In this talk, however, Susie will discuss how the skills that people develop through dealing with food allergies –like commitment and perseverance– are also highly predictive of success. This presentation will provide food allergic teens with a whole new perspective on themselves and their gifts!

Speakers
avatar for Natalie Hultquist

Natalie Hultquist

Natalie Hultquist is a teenager who resides in Chicago and attends the University of Chicago Laboratory School.  Natalie has life-threatening food allergies to peanuts and tree nuts.  She has experienced six food challenges including four passed challenges for pine nuts, macadamia nuts, hazelnut, and almonds. Natalie has not passed pecans yet, but she thinks 3rd time will be a charm!  Natalie has successfully traveled outside... Read More →
avatar for Susie Hultquist

Susie Hultquist

Susie is the Founder and CEO of Spokin, a mobile app with the mission of bringing the | world's food allergy advice, wisdom, and recommendations online and making it all available to everybody everywhere. She has been a professional investor for multiple decades and recently left Wall Street to pursue investing in her own startup. Her goal is to disrupt the stress and anxiety of managing health issues. Food allergies, Spokin's... Read More →


Saturday November 12, 2016 11:00am - 11:30am
Executive AB

11:00am

Ask the Allergist
Open only to middle school teens with food allergies, this session will allow attendees to ask questions about their health in a private and supportive environment. If you have a question you’ve always been afraid to ask, this is your chance to finally get an answer from Dr. Gallagher, an expert on the subject!

Speakers
avatar for Joel Gallagher, MD

Joel Gallagher, MD

Dr. Gallagher is currently an Asthma/Allergy Fellow at the Medical College of Wisconsin and the Children's Hospital of Wisconsin. He specializes in food allergies and immunodeficiencies. After graduating from medical school at the University of Arkansas, he completed a pediatric residency in Charlotte, North Carolina at Levine Children's Hospital before moving to Milwaukee for fellowship. He is board-certified... Read More →


Saturday November 12, 2016 11:00am - 11:30am
Executive CD

11:00am

Step by Step, State by State: Moving the Needle on Food Allergy Legislation
As awareness grows around the dangers of food allergies, legislative support is required to help to keep patients safe. In this presentation, Jon and Jen will provide an update on some of the recent developments in public policy that address the needs of people with food allergies, as well as ongoing issues of interest, including access to epinephrine, food labelling, and related issues. The session will also provide some information for how to become more involved in advocating for particular policies in your state.

Speakers
avatar for Jon Hoffman

Jon Hoffman

Jon Hoffman joined the FARE team in August 2016 as the Associate Director of Advocacy, and brings 4 years of experience in the digital advocacy realm, leading campaigns and utilizing new media to motivate and direct advocates to make their voices heard with legislators and regulators. He will be working to expand FARE's online capabilities and enhancing the tools advocates will use to share their stories, and encourage the passing of new... Read More →
avatar for Jen Jobrack

Jen Jobrack

As Senior National Director of Advocacy for Food Allergy Research & Education (FARE), Jen manages the state, municipal, and industry-specific policy portfolio focused on the inclusion and safety of people with food allergies. Recent campaigns include access to epinephrine in schools, public places, and airlines, college and university preparedness for students with food allergies, restaurant accommodations, food labelling, and improving the... Read More →


Saturday November 12, 2016 11:00am - 12:00pm
Regency CD

11:30am

Ask the Allergist
Open only to high school teens with food allergies, this session will allow attendees to ask questions about their health in a private and supportive environment. If you have a question you’ve always been afraid to ask, this is your chance to finally get an answer from Dr. Chiu, an expert on the subject!

Speakers

Saturday November 12, 2016 11:30am - 12:00pm
Executive AB

11:30am

Dare to Be Different
The old adage "you are what you eat" represents an interesting duality for people suffering from food allergies. On one hand, dietary differences can make people feel singled out and lead to bullying and low self esteem. On the other hand, these differences can open young people up to unusual culinary experiences, which could be seen as something truly special! In this talk, Katherine will encourage young people to embrace their unique experiences and use them to motivate others to continue the chain of inspiration and education in the growing food allergy awareness community.

Speakers
avatar for Katherine Schug

Katherine Schug

Katherine is a 17 year old junior in high school, who plays violin, clarinet, and bass, and loves to draw. She is severely allergic to dairy, eggs, and nuts, and creates change via her website, teenfaab.com. Teen FAAB (Food Allergies & Anti-Bullying) provides support and advice to teens, and is dedicated to providing education and spreading awareness about food allergies. She has spoken at various conferences in Las Vegas and Washington D.C... Read More →


Saturday November 12, 2016 11:30am - 12:00pm
Executive CD

12:00pm

Lunch
Saturday November 12, 2016 12:00pm - 1:15pm
Regency AB

1:15pm

#WellnessWorks

Teens who are living with food allergies face a daily challenge.  You take precautions, check labels, carry your medication and you know and follow your emergency care plan.  These are the tools you use to maintain your physical wellness.  But what about your emotional wellness?  Because living with a food allergy can be a challenge to school life, friendships and to the choices you'll make as you become more independent - you've got even more stress than most teens!  You need tools to maintain your emotional wellness too.  Learn some of these tools in this session and find out how wellness works to help you enjoy life more!  



Speakers
avatar for Jeanne Herzog

Jeanne Herzog

Jeanne Herzog, PHD is a lifespan psychologist in private practice in Wisconsin. She holds a masters degree in developmental psychology from Columbia University in New York, and a doctoral degree in counseling psychology from Marquette University in Milwaukee. One of her specialties is the field of health psychology, helping people with the psychological adjustment to health and medical conditions, including having a severe food allergy. She has... Read More →


Saturday November 12, 2016 1:15pm - 2:10pm
Executive AB

1:15pm

Yoga & Other Tips for Managing Food Allergies & Asthma
Allergies are complicated pathologies, which are understood and addressed a number of different ways in various healing communities. Most would agree that a natural approach is ideal whenever possible. Tracy will explain how simple yoga techniques can be used to minimize stress and anxiety, which have similar physical effects as the allergic reactions themselves, and walk participants through some breathing exercises and postures that they can practice anytime anyplace.

Speakers
TS

Tracy Swanson

Tracy is: a mother two children– 12-year old Malcolm and 14-year-old Micaela, who has asthma and life-threatening food allergies to dairy, eggs, gluten (wheat, barley, rye), peanuts, tree nuts, shellfish, chicken and turkey; an attorney who works for NYS advocating for youths who have been placed in NYS residential facilities; a yoga instructor, who is certified and registered with Yoga Alliance; and too many other things to be... Read More →


Saturday November 12, 2016 1:15pm - 2:10pm
Executive CD

1:15pm

Current Updates in Food Allergy Research
Come to this session to get the latest updates on what is happening in the world of food allergy research.

Speakers
avatar for Joel Gallagher, MD

Joel Gallagher, MD

Dr. Gallagher is currently an Asthma/Allergy Fellow at the Medical College of Wisconsin and the Children's Hospital of Wisconsin. He specializes in food allergies and immunodeficiencies. After graduating from medical school at the University of Arkansas, he completed a pediatric residency in Charlotte, North Carolina at Levine Children's Hospital before moving to Milwaukee for fellowship. He is board-certified... Read More →


Saturday November 12, 2016 1:15pm - 2:15pm
Regency CD

2:15pm

Ask the Allergist
Open only to parents of teens with food allergies, this session will allow attendees to ask questions about their health in a private and supportive environment. If you have a question you’ve always been afraid to ask, this is your chance to finally get an answer from Dr. Gallagher, an expert on the subject!

Speakers
avatar for Joel Gallagher, MD

Joel Gallagher, MD

Dr. Gallagher is currently an Asthma/Allergy Fellow at the Medical College of Wisconsin and the Children's Hospital of Wisconsin. He specializes in food allergies and immunodeficiencies. After graduating from medical school at the University of Arkansas, he completed a pediatric residency in Charlotte, North Carolina at Levine Children's Hospital before moving to Milwaukee for fellowship. He is board-certified... Read More →


Saturday November 12, 2016 2:15pm - 2:45pm
Regency CD

2:20pm

Yoga & Other Tips for Managing Food Allergies and Asthma
Allergies are complicated pathologies, which are understood and addressed a number of different ways in various healing communities. Most would agree that a natural approach is ideal whenever possible. Tracy will explain how simple yoga techniques can be used to minimize stress and anxiety, which have similar physical effects as the allergic reactions themselves, and walk participants through some breathing exercises and postures that they can practice anytime anyplace.

Speakers
TS

Tracy Swanson

Tracy is: a mother two children– 12-year old Malcolm and 14-year-old Micaela, who has asthma and life-threatening food allergies to dairy, eggs, gluten (wheat, barley, rye), peanuts, tree nuts, shellfish, chicken and turkey; an attorney who works for NYS advocating for youths who have been placed in NYS residential facilities; a yoga instructor, who is certified and registered with Yoga Alliance; and too many other things to be... Read More →


Saturday November 12, 2016 2:20pm - 3:15pm
Executive AB

2:20pm

#WellnessWorks

Teens who are living with food allergies face a daily challenge.  You take precautions, check labels, carry your medication and you know and follow your emergency care plan.  These are the tools you use to maintain your physical wellness.  But what about your emotional wellness?  Because living with a food allergy can be a challenge to school life, friendships and to the choices you'll make as you become more independent - you've got even more stress than most teens!  You need tools to maintain your emotional wellness too.  Learn some of these tools in this session and find out how wellness works to help you enjoy life more!  




Speakers
avatar for Jeanne Herzog

Jeanne Herzog

Jeanne Herzog, PHD is a lifespan psychologist in private practice in Wisconsin. She holds a masters degree in developmental psychology from Columbia University in New York, and a doctoral degree in counseling psychology from Marquette University in Milwaukee. One of her specialties is the field of health psychology, helping people with the psychological adjustment to health and medical conditions, including having a severe food allergy. She has... Read More →


Saturday November 12, 2016 2:20pm - 3:15pm
Executive CD

2:45pm

What I Wish I Knew
Anna will look back on her recent college experience and guide students through some of the most important and challenging scenarios that arise for college age teens with food allergies. Some of the topics that she will cover include risk-taking and safety, dealing with questions and attacks from uninformed peers, and taking on the responsibility of self care with decreased parental oversight. 

Speakers
avatar for Anna Ressler

Anna Ressler

Anna Ressler is a recent college graduate with a bachelor's degree in Culinary Arts and Food Service Management from Johnson & Wales University. In spite of (and because of) her allergies to tree nuts, peanuts, and shellfish, she has worked in the foodservice industry since high school. As a result, Anna has met people with all levels of food allergy knowledge and realizes how important it is for those with allergies to be comfortable... Read More →


Saturday November 12, 2016 2:45pm - 3:15pm
Regency CD

3:15pm

The Right to Live in the World: Food Allergies, Inclusion, and Disability Law
The law protects the right of people with food allergies to live in the world– to play, to travel, to work, and to be included. In this session, Mary will explain the rights of people with food allergies and introduce teens who have had the courage to stand up for theirs. 

Speakers
SP

Sam Picone Louro

My name is Sam, I'm thirteen and I have a passion for art. All kinds of art; I love to read and write, and I also draw and paint. I enjoy theater, drama, and tragedy mostly, which is what got me into this. Because my convictions for standing up for what I believe in is stronger then my joy for theater.It is no exaggeration at all when I say I would not be the same without the people in my life, whether their influence on me was bad or... Read More →
avatar for Mary Vargas

Mary Vargas

Mary Vargas is a founding partner at Stein & Vargas, LLP, a nationwide civil rights law firm with a special interest in ensuring equal access for individuals with food allergies. She litigates important disability rights cases throughout the United States in both federal and state courts. Mary is a 1998 Skadden Fellow , a 1994 Truman Scholar, and a graduate of the University Connecticut School of Law.
avatar for Mason Wicks-Lim

Mason Wicks-Lim

Mason Wicks-Lim is eleven years old, and has life threatening allergies to peanuts and tree nuts. Mason experienced discrimination when he was barred from a theater program because of his allergies. He knew that what happened to him was wrong and he didn't want the same thing to happen to other people, so he learned more about his rights and filed a complaint with the Department of Justice. As a result the DOJ issued a Letter of Finding... Read More →



Saturday November 12, 2016 3:15pm - 4:15pm
Regency CD

4:15pm

Group Photo
Saturday November 12, 2016 4:15pm - 4:30pm
Hotel Lobby - Steps

4:30pm

Ask the Attorney
Stop by Teen Summit's Ask the Attorney table, where Mary is available to answer questions about laws as tehy relate to food allergies.


Speakers
avatar for Mary Vargas

Mary Vargas

Mary Vargas is a founding partner at Stein & Vargas, LLP, a nationwide civil rights law firm with a special interest in ensuring equal access for individuals with food allergies. She litigates important disability rights cases throughout the United States in both federal and state courts. Mary is a 1998 Skadden Fellow , a 1994 Truman Scholar, and a graduate of the University Connecticut School of Law.



Saturday November 12, 2016 4:30pm - 5:30pm
Atrium

4:30pm

Ask the College
Stop by Teen Summit's Ask the College table, where Laurea is available to answer your questions on going to college with food allergies.

Speakers
avatar for Laura Croteau

Laura Croteau

Laura has been working for the University of Iowa since June of 2015. She completed her B.S. degree in dietetics at Saint Catherine University in Saint Paul, Minnesota and her dietetic internship at Concordia College in Moorhead, Minnesota. At the university, Laura helps students with food allergies, other dietary requests, weight management, and general nutrition education. Laura enjoys getting to know what students want when it comes to... Read More →


Saturday November 12, 2016 4:30pm - 5:30pm
Atrium

4:30pm

Ask the Registered Dietitian
Stop by Teen Summit's Ask the Dietitian table, where Mary Beth is avaailabble to answer your questions about maintaining a healthy diet with food allergies.


Speakers
avatar for Mary Beth Feuling

Mary Beth Feuling

Mary Beth Feuling, Advanced Practice Dietitian – Quality Improvement & Research at Children’s Hospital of Wisconsin specializes in working with pediatric patients in the area of nutrition care in regards to feeding disorders, food allergy, and gastroenterology. She has a vast range of experience in caring for patients in both the hospital and outpatient setting. She had a wide range of interests as she was a Food Scientist... Read More →


Saturday November 12, 2016 4:30pm - 5:30pm
Atrium

5:30pm

Dinner (not provided)
Saturday November 12, 2016 5:30pm - 7:00pm
On Own

7:00pm

Teen Social
Most Teens say this is the highlight of their weekend at Teen Summit! Dance, play games and have a blast making new friends.

Saturday November 12, 2016 7:00pm - 9:00pm
Regency AB

7:00pm

Parent Reception
Meet other parents of teens managing food allergies during this social event while your teens dance the night away next door!

Saturday November 12, 2016 7:00pm - 9:00pm
Regency D
 
Sunday, November 13
 

8:30am

Taking Control of Your Food Allergies
Knowledge is power, and there is power in numbers. For this presentation, Alex, Nikash, and Isabelle will join forces and share anecdotal advice for managing the many challenges that arise from food allergies. This talk is meant to inspire young people to empower themselves and others by acquiring and sharing as much knowledge as possible and advocate for their own health and happiness in the face of adversity.

Speakers
avatar for Alex Davessar

Alex Davessar

Alex Davessar is a junior at Walsh Jesuit High School in Cuyahoga Falls, Ohio. He was diagnosed with an allergy to peanuts and tree nuts when he was 18 months old. Alex is a member of Walsh Jesuit’s track and field team. He also writes for the school newspaper, plays baseball, is a member of student government, and was recently appointed as a member of the Ohio Attorney General Teen Ambassador Board. During his... Read More →
avatar for Nikash Khanna

Nikash Khanna

Nikash Khanna is a 16 year old junior from Cupertino, California. He has severe allergies to peanuts, tree nuts, beef, pork, shellfish, gelatin, eggs, coconut, and seeds, to name a few. He has participated in various FARE events, and is excited to share his experiences, spread awareness, and help others manage their allergies. He has developed a mobile app called the Food Allergy Snapper, which is available for free in the App Store. The app... Read More →
avatar for Isabelle Rock

Isabelle Rock

Izzy is a junior at Menomonee Falls High School, Menomonee Falls, WI. She has food allergies to peanuts and tree nuts. She creates new allergen free baked goods for herself and her brother who is allergic to milk, eggs, and nuts. She is an avid traveler and plays high school tennis. She is on the board of her school's Key Club, she is in the Honor's German Society, and plays flute in the Wind Symphony. Izzy also spoke at the Milwaukee... Read More →


Sunday November 13, 2016 8:30am - 9:25am
Executive CD

8:30am

Making the Jump: High School to College
Transitioning to college can be overwhelming for anyone, and when you add food allergies to the mix, it makes things even more difficult. In this session, Laura and Shelley will share information about college departments and accommodations that can be invaluable resources, and offer tips for navigating the process.

Speakers
avatar for Laura Croteau

Laura Croteau

Laura has been working for the University of Iowa since June of 2015. She completed her B.S. degree in dietetics at Saint Catherine University in Saint Paul, Minnesota and her dietetic internship at Concordia College in Moorhead, Minnesota. At the university, Laura helps students with food allergies, other dietary requests, weight management, and general nutrition education. Laura enjoys getting to know what students want when it comes to... Read More →
avatar for Shelly DeRousse

Shelly DeRousse

Shelly DeRousse is a parent of a child with life-threatening food allergies and an advocate for children with food allergies and their families. She is also an attorney who has represented children with food allergies pro bono in negotiating accommodations for their allergic conditions and disabilities with their schools. In 2010, Shelly was appointed by the Illinois State Board of Education and Illinois Department of... Read More →
avatar for Kristi Grim

Kristi Grim

National Programs Manager, Food Allergy Research & Education
Kristi Grim is the College Outreach Manager for Food Allergy Research & Education (FARE).  As part of the FARE team, Kristi works to ensure the safety and inclusion of students with food allergies on college campuses.  Kristi worked with committees and expert stakeholders to develop FARE's Pilot Guidelines for Managing Food Allergies in Higher Education, which form the basis for the College Food Allergy Program. She worked with... Read More →


Sunday November 13, 2016 8:30am - 9:30am
Regency CD

9:30am

Cooking with Ally: Chopped Chef Junior Contestant
Young chef Ally competed on Chopped Junior this year, and now she's bring her skills to Teen Summit. Get some cooking tips from Ally and hear what it's like to be on an ultra-competitive cooking show.

Speakers
avatar for Ally Kustera

Ally Kustera

Ally Kustera is a 7th grader at Finley Middle School in Huntington, NY. Ally plays on the Finley soccer team, plays trumpet, sings and acts. She has been cooking and baking since she was 4. Ally appeared on Season 2 of Chopped Junior on Food Network in May 2016. Ally has appeared in local theater productions and school shows as The Cat in Seussical, Little Red in Into the Woods and most recently as Nala in the Lion King Junior. She loves movies... Read More →



Sunday November 13, 2016 9:30am - 10:15am
Regency AB

9:30am

Almost Adults: Parenting Tips for Tweens & Teens
Parenting is a delicate balance of providing support while encouraging independence, and for parents of children with food allergies, it can be especially difficult to feel confident in moving into a less supportive role as children become more independent. Gina will guide us through the growth and development cycle of adolescents with food allergies, from diagnosis to self discovery, and soothe the stress of parents when they don't have all the answers.

Speakers
avatar for Gina Clowes

Gina Clowes

Gina Clowes is the Director of Education for Food Allergy Research & Education (FARE), and Program Director for a cooperative agreement with the Centers for Disease Control and Prevention (CDC).  She is the founder of the online support group Allergy Moms serving thousands of families and professional members worldwide. Active in food allergy advocacy, her advice has appeared in numerous print, radio, and television features... Read More →


Sunday November 13, 2016 9:30am - 10:15am
Regency CD

10:15am

Break
Sunday November 13, 2016 10:15am - 10:30am
Atrium

10:30am

Dating with Food Allergies
Dating is hard, but food allergies can add a whole new element. This panel will feature Emily, Brett, and Kristen sharing personal stories about dating with food allergies and providing tips for getting through it.

Moderators
avatar for Kristen Kauke

Kristen Kauke

Kristen Kauke began her career as a Clinical Social Worker in 1999, after earning her Masters in Social Work from the University of Chicago. Kristen works with ages 12 through adult.  She provides individual and family support.  Additionally, she facilitates a weekly process group for high school aged students.  In an effort to promote mental health awareness, she is a Mental Health First... Read More →

Speakers
avatar for Emily Hall

Emily Hall

Emily Hall is a 20 year old student at the University of Central Arkansas, who is studying Elementary Education. She lives with severe peanut and tree nut allergies that she has had  since her childhood years. Her younger sister, Avery, suffers with severe food allergies, as well. Emily feels naturally compelled to educate on the dangers of food allergies. She has worked with various businesses, student nursing classes, college campus... Read More →
avatar for Brett Hoffman

Brett Hoffman

Brett Hoffman is a 17 year old senior at Ottawa Hills High School near Toledo, Ohio. He is captain of both the varsity basketball and golf teams. In addition to playing sports, Brett is also an active member of the community, participating in Youth Leadership Toledo and YIPEE (Youth In Philanthropy Encouraging Excellence). Ever since he was one year old, he has been allergic to peanuts, tree nuts, fish, shellfish, and sesame. For the past 16... Read More →


Sunday November 13, 2016 10:30am - 11:15am
Executive AB

10:30am

Overcoming Bullying - Firsthand Accounts and Strategies
This middle school session is dedicated to teaching students how to deal with bullying, as well as different strategies for ending bullying altogether. Carson and Daytona will share stories about overcoming bullying and using their experiences as a way to shed light on the problem in their school communities. 


Speakers
avatar for Carson Diehl

Carson Diehl

Carson Diehl is a high school student and food allergy advocate, and has dedicated her time to educating others about the importance of food allergy awareness. She is a member of FARE's Teen Advisory Group and was a speaker at the 2015 Teen Summit in Washington, DC, where she spoke about her personal experience dealing with food allergy bullying and anxiety. Carson hopes to continue to educate and help others deal with food allergies... Read More →
avatar for Daytona Hodson

Daytona Hodson

Daytona Hodson is 14 years old and has a peanut allergy. He has been part of TAG for the past 2 years and has presented at the FARE National Conference. He came to this conference last year and was inspired to do his own presentation. Now he is still a local advocate and leader in his area and strides to make everyone included.
avatar for Susan Tatelli

Susan Tatelli

Susan Tatelli is a 13 year old eighth grade student at Northwood Junior High School in Highland Park, Illinois, who recently completed an 18-month enrollment in PRROTECT (Peanut Reactivity Reduced by Oral Tolerance in an Anti-IgE Clinical Trial). Of the 36 subjects enrolled in PRROTECT, 8 subjects initially received a placebo. Susan was one of the control subjects in the study, meaning that Susan attempted to achieve rapid desensitization to... Read More →



Sunday November 13, 2016 10:30am - 11:15am
Executive CD

10:30am

From First Sleepovers to College: Coaching Your Child to Independence

Time flies fast and adulthood may seem just around the corner for your teen. But how do you prepare them to manage their allergies when you’re not there? From sleepovers to living on their own, hear from Denise and Jill – two moms who have been there. 


Speakers
avatar for Denise Bunning

Denise Bunning

Denise A. Bunning is an educator, support group leader and advocate who actively works to improve the lives of children with or without food allergies. A former elementary school teacher, Denise earned a BA in Early Childhood/Special Education from Boston College, an MSED in Special Education from Northern Illinois University, and a CAS in School Administration from National Louis University. In 1997, Denise co-founded MOCHA (Mothers of Children... Read More →
avatar for Jill Mindlin

Jill Mindlin

Jill Mindlin is a practicing attorney who resides in Port Washington, New York. She practices in the area of commercial real estate. She received a Bachelor of Arts from the University of Pennsylvania and a Juris Doctor from Brooklyn Law School. Jill is a member of the FARE Advisory Council and is also on the FARE Advocacy Committee. She has been involved in drafting legislation and school guidelines for caring for students with food allergies on... Read More →



Sunday November 13, 2016 10:30am - 11:15am
Regency CD

11:15am

Growing and Thriving with Food Allergies
While living with food allergies can often make life feel limited and delicate, overcoming them can make young people feel powerful and full of potential! In this session, Cassandra will remind her teen audience that life can still be rich and full, even with food allergies.

Speakers
avatar for Cassandra Walia

Cassandra Walia

Cassandra Walia, MS, RD, CD, CNSC, is a clinical dietitian at Children’s Hospital of Wisconsin. She has worked with children with food allergies for more than 5 years and is a member of the clinical advisory committee for the Food Allergy Association of Wisconsin – Southeast Region Support group.


Sunday November 13, 2016 11:15am - 11:45am
Regency AB

11:15am

Teens Talk - Q & A With Teens
Come prepared with questions! This is your chance to get the teen perspective on anything from dating to school to eating out. Get some teen insight for talking to your child about these important topics.

Speakers
avatar for Jackson Anderson

Jackson Anderson

Jackson Anderson is an 8th grader from Sarasota, Florida. He enjoys playing guitar, drums and sailing in his free time.  Jackson has had several allergic reactions throughout his life which required epinephrine. In the past year he had an allergic reaction that required epinephrine and self-administered. He has participated in two food allergy walks and this will be his 3rd teen summit ( 5th for his family) He considers himself a... Read More →
avatar for Ella McNiece

Ella McNiece

Ella is a freshman at Scituate High School in Scituate, MA, but has attended school in both Rhode Island and Massachusetts. At a few weeks of age, Ella first reacted to infant formula. After several allergic reactions, at 18 months of age, she was diagnosed with allergies to Peanuts, Tree Nuts, Sesame, Milk/Dairy, Soy, Egg, Wheat, Fish, Shell Fish, Strawberry and Peas/Beans/Legumes. Over the years, Ella has completed much testing and had many... Read More →
avatar for Claudia Michaels

Claudia Michaels

Claudia is a high school senior from Charlotte, North Carolina. After experiencing an anaphylactic reaction to peanuts at age 6, she was diagnosed with severe peanut and tree nut allergies. Claudia is one of FARE's Southeast Regional Teen Advisory Group leads, and she has attended Teen Summit four times. She has participated in food allergy walks, written her state and federal officials urging support for food allergy legislation, and started a... Read More →
avatar for Susan Tatelli

Susan Tatelli

Susan Tatelli is a 13 year old eighth grade student at Northwood Junior High School in Highland Park, Illinois, who recently completed an 18-month enrollment in PRROTECT (Peanut Reactivity Reduced by Oral Tolerance in an Anti-IgE Clinical Trial). Of the 36 subjects enrolled in PRROTECT, 8 subjects initially received a placebo. Susan was one of the control subjects in the study, meaning that Susan attempted to achieve rapid desensitization to... Read More →


Sunday November 13, 2016 11:15am - 11:45am
Regency CD

11:45am

FARE's Teen Advisory Group (TAG): Making An Impact
TAG Members are making a huge impact on their communities and peers with all of their amazing advocacy work. From awareness videos to food drives, come see what your teens are doing to make a difference! 

Speakers
avatar for Carson Diehl

Carson Diehl

Carson Diehl is a high school student and food allergy advocate, and has dedicated her time to educating others about the importance of food allergy awareness. She is a member of FARE's Teen Advisory Group and was a speaker at the 2015 Teen Summit in Washington, DC, where she spoke about her personal experience dealing with food allergy bullying and anxiety. Carson hopes to continue to educate and help others deal with food allergies... Read More →
avatar for Daytona Hodson

Daytona Hodson

Daytona Hodson is 14 years old and has a peanut allergy. He has been part of TAG for the past 2 years and has presented at the FARE National Conference. He came to this conference last year and was inspired to do his own presentation. Now he is still a local advocate and leader in his area and strides to make everyone included.
avatar for Ella McNiece

Ella McNiece

Ella is a freshman at Scituate High School in Scituate, MA, but has attended school in both Rhode Island and Massachusetts. At a few weeks of age, Ella first reacted to infant formula. After several allergic reactions, at 18 months of age, she was diagnosed with allergies to Peanuts, Tree Nuts, Sesame, Milk/Dairy, Soy, Egg, Wheat, Fish, Shell Fish, Strawberry and Peas/Beans/Legumes. Over the years, Ella has completed much testing and had many... Read More →
avatar for Claudia Michaels

Claudia Michaels

Claudia is a high school senior from Charlotte, North Carolina. After experiencing an anaphylactic reaction to peanuts at age 6, she was diagnosed with severe peanut and tree nut allergies. Claudia is one of FARE's Southeast Regional Teen Advisory Group leads, and she has attended Teen Summit four times. She has participated in food allergy walks, written her state and federal officials urging support for food allergy legislation, and started a... Read More →
avatar for Katherine Schug

Katherine Schug

Katherine is a 17 year old junior in high school, who plays violin, clarinet, and bass, and loves to draw. She is severely allergic to dairy, eggs, and nuts, and creates change via her website, teenfaab.com. Teen FAAB (Food Allergies & Anti-Bullying) provides support and advice to teens, and is dedicated to providing education and spreading awareness about food allergies. She has spoken at various conferences in Las Vegas and Washington D.C... Read More →
avatar for Kate Stack

Kate Stack

Kate Stack is a high school freshman near Chicago, Illinois who has been allergic to peanuts and tree nuts since the age of three. She is currently serving on FARE’s Teen Advisory Group (TAG) and has participated in several food allergy studies. Her passions for technology and writing play a key part in her advocacy for those with food allergies. One of her recent projects was the development of an interactive stuffed animal that is... Read More →
avatar for Susan Tatelli

Susan Tatelli

Susan Tatelli is a 13 year old eighth grade student at Northwood Junior High School in Highland Park, Illinois, who recently completed an 18-month enrollment in PRROTECT (Peanut Reactivity Reduced by Oral Tolerance in an Anti-IgE Clinical Trial). Of the 36 subjects enrolled in PRROTECT, 8 subjects initially received a placebo. Susan was one of the control subjects in the study, meaning that Susan attempted to achieve rapid desensitization to... Read More →


Sunday November 13, 2016 11:45am - 12:45pm
Regency AB

12:45pm

Innovation Tank Winner Announcement
You heard from some impressive teens Friday night and have cast your ballots. Now come find out who won the coveted title of Young Innovator of the Year!
Prizes for the Exibitor Bing drawing will also be awared. A Special thank you Enjoy Life Foods and AllerGuarder for their generous in-kind donations.


Sunday November 13, 2016 12:45pm - 1:00pm
Regency AB