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Saturday, November 12 • 8:30am - 9:15am
What I learned: Teen Clinical Trial Experiences

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Susan and Amanda have both gone through clinical trials, and learned a lot from their experiences. 

In this session, Susan will share what her clinical trial experiences taught her about anaphylaxis. Susan was a participant in PRROTECT, a double-blind OIT (oral immunotherapy) clinical trial. She now knows she received the placebo.  Susan had multiple anaphylactic reactions during the clinical trial and became very familiar with the signs and symptoms of anaphylaxis and knowing what to do.  Susan made a video including footage of herself during one of her anaphylactic reactions, which she will show.  After the video, attendees will have the opportunity to practice injecting an expired EpiPen into an orange.

Amanda will discuss her experience going through two clinical trials and then working on research. She'll talk about the things she's learned from each of these, and how her family has been impacted by clinical trial experiences. 

 


Moderators
avatar for Christina Eldridge, MD

Christina Eldridge, MD

Dr. Eldredge is board-certified in Family Medicine, and has a personal interest in food allergies, stemming from her daughter's diagnosis with a peanut allergy. At the time of diagnosis, she was appalled by the lack of training provided to parents and patients for dealing with food allergy emergencies, which led her to begin development of an app aimed at teaching parents and other caregivers how and when to use epinephrine. Dr. Eldridge... Read More →

Speakers
avatar for Amanda Palin

Amanda Palin

Amanda is an 18 year-old high school senior from NY, NY. Allergies run in her family. She was diagnosed with peanut allergies at the age of 2, entered her first clinical trial at the age of 11, and entered her second clinical trial at the age of 15. After two clinical trials were proved unsuccessful for her, she turned to research. She interned at the pediatric lab of allergy and immunology at Mount Sinai throughout her junior year of HS. 
avatar for Susan Tatelli

Susan Tatelli

Susan Tatelli is a 13 year old eighth grade student at Northwood Junior High School in Highland Park, Illinois, who recently completed an 18-month enrollment in PRROTECT (Peanut Reactivity Reduced by Oral Tolerance in an Anti-IgE Clinical Trial). Of the 36 subjects enrolled in PRROTECT, 8 subjects initially received a placebo. Susan was one of the control subjects in the study, meaning that Susan attempted to achieve rapid desensitization to... Read More →


Saturday November 12, 2016 8:30am - 9:15am
Regency CD

Attendees (5)